Wednesday, June 29, 2011

Some Helpful Sites for research

I wanted to make sure I was offering different sites for others to do their research. I found many answsers while doing my own research in the past year or so. I found that the more I know the better I am equipped to make suggestions to the doctors who are treating me. I will say many doctors are reluctant to listen or take your suggestions because they don't like the fact that we know more than they. I am thankful that my rheumatologist and primary care physican encourage me to do as much research as possible. When I have questions both give me their full attention and if they don't know the answer they will do their research to get me the answer. I am truly blessed to have Dr. Nunez and Dr. Kulkarni. These two doctors are always making decisions about my care with my best interest at heart.
So here are the website that I have gotten a lot of information from.
1. www.hughes-syndrome.org/

2. www.apsfa.org/

3.miscarriage.about.com/od/.../p/antiphosphol.htm

4. http://www.antiphospholipid.net/

5. http://www.netdoctor.co.uk/diseases/facts/antiphospholipid.htm

6. http://www.hss.edu/Conditions/Antiphospholipid-Syndrome

7. http://www.rarediseasesnetwork.org

8. http://www.apsfa.org/links.htm 

I will have more for you to research soon. I am trying to compile as much information as possible. In the mean time Please visit http://www.facebook.com/home.php#!/APSFA . You can also look online and find many support groups, check facebook as there are many groups you can find and meet people with APS.

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